Meet Connor Way. Connor is your typical 8-year-old boy: he loves to play outside with his friends, go to school, and spend time with his family, especially his grandfather he calls “Papa.” But there’s something different about Connor’s story, his “Papa” had ALS.
In 2017, Bill Beaton, better known as “Papa,” began having some odd symptoms of weakness in his legs. Like many people diagnosed with ALS, he went to his fair share of doctors and had many tests run, even a back surgery hoping to solve the problem. Never in a million years did he and his family expect to finally hear the words, “You have ALS.”
Continue reading Everyone Can Make a Difference in the Fight Against ALS
An ALS diagnosis is not only devastating to the person receiving it, but to their entire family, and kids are all too often the collateral damage. The disease forces many kids to pitch in as caregivers and often delay their educations. Kids who serve as caregivers often talk about feeling isolated and unsupported by their peer groups.
In order to help empower kids in the fight against ALS, The ALS Association is celebrating the second annual ALS Youth Action Day on Saturday, May 16. It’s a day where kids across the country can take the ALS Youth Challenge and use the power of their creativity to help raise awareness and critical funds that help researchers around the world look for treatments and a cure while enabling people with ALS to live longer, higher quality lives.
Continue reading Challenging Our Youth to Join the Fight Against ALS