Every Opportunity Adds Up

Every contribution – no matter how big – brings us closer to the cure.

This August, The ALS Association is grateful for partners that are helping to support our fight against ALS through providing unique opportunities to give. As shown by the Ice Bucket Challenge – every opportunity adds up! You can:
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Clinical Trial: Amylyx Pharmaceuticals is Now Enrolling in Phase II CENTAUR Clinical Trial

Amylyx Pharmaceuticals, championed by The ALS Association, is currently enrolling up to 132 individuals nationwide for a Phase II CENTAUR (Combination of Phenylbutyrate and Tauroursodeoxycholic Acid) clinical trial to assess the efficacy and safety of AMX0035 for the treatment of ALS. The Neurology Clinical Research Institute (NCRI) at Massachusetts General Hospital and the Northeast ALS Consortium (NEALS) will oversee the trial, and 25 NEALS member medical centers across the United States will participate. The ALS Association, along with ALS Finding a Cure® supported this important trial with a $2.96 million grant.

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Every Musician Adds Up: Meet Lauren & Ann

All month, we are featuring stories of individuals who are having an impact in the fight against ALS.

Meet Lauren Duski and Ann Gillis. Lauren is a talented musician, storyteller, songwriter and devoted caregiver to Ann Gillis, an independent filmmaker living with ALS. With Ann’s encouragement and generosity, Lauren uprooted her life to pursue a country music career and become the successful musician she is today.

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Every Fan Adds Up: Meet Shelly

All month, we are featuring stories of individuals who are having an impact in the fight against ALS.

Meet Shelly Hoover. Shelly is a wife, mother, grandmother, daughter, sister, friend, educator, Giants baseball fan, military veteran and ALS advocate. When you meet Shelly, there are two things that immediately become apparent, her joy for life and her passion for working to advocate for people with ALS.  Her accomplishments are many. Since her diagnosis, she has volunteered, advocated and fundraised tirelessly. She and her family are why we fight for a cure!

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Team Challenge ALS Makes Finals of The Basketball Tournament!

Please join us in congratulating Team Challenge ALS for winning last night’s thrilling 2-OT semifinal victory in The Basketball Tournament, a 5-on-5, single-elimination basketball tournament. They play in the final game on Thursday night at 7 pm ET on ESPN. The winning team takes home $2 million!

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Announcing New Care Services Educational Materials: Spanish Resource Guides & Key Medical Information App

Over the last several months, The ALS Association has worked on developing and implementing new educational tools to meet the needs and requests of our community. We are pleased to announce and highlight two of our newest projects – our resource guide series translated into Spanish and the Key Medical Information App – which are now available.

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Every Fan Adds Up

ALS has always had a connection with baseball. In 1939 when Lou Gehrig stood on the mound, the world became aware of the disease. In 2014, Boston college player Pete Frates inspired the world to take part in the fight against ALS. In 2017, Major League Baseball is supporting The ALS Association’s launch of the Home Health Initiative. Together, we want to raise over $1 million dollars to provide in-home care to individuals and families affected by ALS.

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