Every Musician Adds Up: Meet Lauren & Ann

All month, we are featuring stories of individuals who are having an impact in the fight against ALS.

Meet Lauren Duski and Ann Gillis. Lauren is a talented musician, storyteller, songwriter and devoted caregiver to Ann Gillis, an independent filmmaker living with ALS. With Ann’s encouragement and generosity, Lauren uprooted her life to pursue a country music career and become the successful musician she is today.

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Every Fan Adds Up: Meet Shelly

All month, we are featuring stories of individuals who are having an impact in the fight against ALS.

Meet Shelly Hoover. Shelly is a wife, mother, grandmother, daughter, sister, friend, educator, Giants baseball fan, military veteran and ALS advocate. When you meet Shelly, there are two things that immediately become apparent, her joy for life and her passion for working to advocate for people with ALS.  Her accomplishments are many. Since her diagnosis, she has volunteered, advocated and fundraised tirelessly. She and her family are why we fight for a cure!

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Team Challenge ALS Makes Finals of The Basketball Tournament!

Please join us in congratulating Team Challenge ALS for winning last night’s thrilling 2-OT semifinal victory in The Basketball Tournament, a 5-on-5, single-elimination basketball tournament. They play in the final game on Thursday night at 7 pm ET on ESPN. The winning team takes home $2 million!

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Announcing New Care Services Educational Materials: Spanish Resource Guides & Key Medical Information App

Over the last several months, The ALS Association has worked on developing and implementing new educational tools to meet the needs and requests of our community. We are pleased to announce and highlight two of our newest projects – our resource guide series translated into Spanish and the Key Medical Information App – which are now available.

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Every Fan Adds Up

ALS has always had a connection with baseball. In 1939 when Lou Gehrig stood on the mound, the world became aware of the disease. In 2014, Boston college player Pete Frates inspired the world to take part in the fight against ALS. In 2017, Major League Baseball is supporting The ALS Association’s launch of the Home Health Initiative. Together, we want to raise over $1 million dollars to provide in-home care to individuals and families affected by ALS.

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Major League Baseball Partners with ALS Association to Launch “MLB Fights ALS” Campaign

Major League Baseball today announced its support of The ALS Association’s ALS Home Health Initiative by launching the MLB Fights ALS campaign, a league-wide fundraising effort set for August 1st-5th. The campaign will be promoted in ballparks and by MLB’s media assets, including MLB.com, the Club websites and MLB Network, as well as via YouCaring.com. Beginning with an initial $50,000 contribution from Major League Baseball, the effort will seek to generate additional funds for the Home Health Initiative’s mission of providing in-home care to individuals and families affected by Lou Gehrig’s Disease.

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New Comprehensive ALS Review Published

In the July 13, 2017 issue of The New England Journal of Medicine, leaders in the ALS field, Drs. Robert Brown of University of Massachusetts Medical School and Dr. Ammar Al-Chalabi of King’s College London, came together to write a comprehensive ALS review. The article is far-reaching in that it covers topics from ALS epidemiology, genetics, pathology, identified disease pathways and potential ALS therapies. Familial (inherited) ALS and sporadic (not inherited) ALS are covered.

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