The ALS Association Blog
Thank you for visiting The ALS Association Blog! The purpose of this blog is to provide news, information, and stories to people living with ALS – including family members, caregivers, and friends.
The blog will also be a place for people to interact amongst themselves and with The Association in a positive environment. To help maintain this environment, we kindly ask that you review our community guidelines, below.
If you’d like to submit a blog post for publication on our blog, please also review the Submission Guidelines below. We look forward to hearing from you!
Should posts or comments violate any of these categories, we reserve the right to remove them without warning.
1. Solicitation or advertising of products or services.
Please refrain from advertising products, services or other such information in your comments, particularly if they refer to non-FDA approved treatments or devices.
2. Offers or solicitations for used or unused durable medical equipment (DME) (hoyer lifts, shower stands, walkers, etc.) or unused prescription medication due to potential liability or sanitation-related issues.
3. External fundraisers not approved or vetted by The Association as we cannot verify whether funds collected will go toward stated charity or cause.
4. Posts containing profanity. Please refrain from using profane or offensive language in your posts.
5. Posts requesting we endorse a survey.
Surveys will remain on our blog only if we have officially approved, vetted and confirmed the methodology for a particular survey. We wouldn’t want you to think we have endorsed a survey that we know nothing about.
6. Posts requesting support for a petition. Unless the petition has been officially vetted, we cannot endorse third party requests to endorse a particular cause.
7. Personnel-related issues. If you have concerns regarding staff or volunteers of The ALS Association, please submit information via email to firstname.lastname@example.org.
8. Patient privacy issues.
We serve thousands of people living with ALS through our chapters, Certified Centers and clinics. Information gathered from these people will not be shared on this blog and is considered a violation of The Association’s confidentiality policy.
9. Comments that are factually inaccurate, misleading, or defamatory. Personal attacks are also prohibited on this page. We will always do our best to respond to and correct factually inaccurate information that is posted to our page and dispel any misinformation. Personal attacks, accusations, or misleading/defamatory content does not create an atmosphere conducive to healthy dialogue.
10. Requests for social media page or external blog “Likes,” not approved by The Association.
11. Comments or content that violates The Association or another company’s trademark or intellectual property or legally privileged information. Intellectual property refers to symbols, names, images, and designs used in business. Similarly, a trademark refers to words, symbols or designs (such as a brand name or a logo) that identify and distinguish the products or services offered by one organization from those offered by others. In addition, please do not disclose proprietary, confidential, or legally privileged information.
Please note that, because of the live nature of the blog, it is not possible for The Association to confirm the accuracy and/or validity of every comment before it is posted. If you believe someone has violated the community guidelines, please report it immediately to email@example.com.
We’d love to share stories that come from members of the ALS community. If you have a story, poem, or other creative work you’d like to share on this blog, please send it to firstname.lastname@example.org along with a brief (60 words or less) description of the author.
September 2016: This month, we’d like to hear from you about children and ALS. Below are some questions to help spark ideas:
- What is the best way for someone with ALS to leave a legacy for his or her children?
- What is the most important thing for someone with ALS to communicate to his or her children?
- Tell us about a time that ALS has strengthened the relationship between a parent and child.
By submitting your story you are agreeing to the following terms:
1. Every story submitted is reviewed by The ALS Association and all stories may not be posted on the blog.
2. Stories which are longer than 1,500 words may be shortened or not posted. Stories that are shorter than 500 words may not be posted.
3. Stories with inappropriate or offensive language as well as information about specific medications or medical treatments may not be posted.
4. Stories that promote external fundraisers, petitions, or surveys not previously approved or vetted by The Association may not be posted.
5. Stories that advertise products or services, particularly if they refer to non-FDA approved treatments or devices, may not be posted.
6. Stories that include offers or solicitations for used or unused medical equipment may not be posted.
7. Stories that violate The Association or another company’s trademark or intellectual property or legally privileged information may not be posted.
8. Stories that are factually inaccurate, misleading, or defamatory may not be posted.
9. Your name will be posted on the Internet along with your story and may be shared on other email and social media platforms as well as Google searches.
10. Do not post personal identifying information such as phone numbers, emails, or addresses.
The Association reserves the right to make slight edits to each story which may include adding or deleting information to ensure the post is in line with our criteria.
We review all submissions and this process may take some time, so your work may not be posted immediately. We cannot guarantee that everything we receive will be published.
This website provides an opportunity for information exchanges and includes interactive features that allow users to communicate with The Association and other individuals. This site is not intended to, and does not, provide medical advice, professional diagnosis, opinion, treatment or services. In addition, this website does not recommend or endorse any specific tests, providers, products, procedures, opinions, or other information that may be mentioned. Always seek the advice of a physician or other qualified health provider with any questions you have regarding a medical condition and/or treatment options.
Any and all health and medical advice and information given on this community are intended for general discussion and educational purposes only. They are in no way intended to serve as actual, individual medical advice. In no way does participating in this community constitute a formal or informal doctor-patient relationship.
Do I have permission to link to this blog and/or use content from it?
This material may not be used without permission from The ALS Association. If you are a member of the media and are seeking an interview or additional information, please email email@example.com. If you would like to use this content, please request permission by emailing firstname.lastname@example.org.
The above guidelines are subject to change without notice.