Central nervous system (CNS) disorders afflict approximately 300 million people worldwide. They often span many years and are severely debilitating. And, in addition to the personal cost to patients and families, the economic burden reaches an estimated $1.5 trillion annually in the U.S.
Significant investment in the development of new therapies must be made to improve outcomes for people suffering from CNS disorders. Unraveling the disease pathways contributing to these disorders and identifying novel molecular targets for drug intervention are essential steps toward developing new treatment avenues.
Continue reading The ALS Association, Huntington’s Disease Society of America, and Teva Pharmaceuticals Launch Teva CNS Target Identification Challenge
The ALS Association, in partnership with the Motor Neurone Disease Association (MND Association), and the ALS Society of Canada, have come together to support the ALS Reproducible Antibody Platform (ALS-RAP) with a $600,000 grant to create an open-access pipeline to validate antibody research. ALS-RAP will provide the ALS research community with the highest quality reliable, renewable antibodies for ALS genes to galvanize and enable a faster and even more efficient development of therapies to address the ALS challenge, globally.
“The ALS Association is delighted to fund this exciting initiative and believe it will be an extremely valuable open resource for researchers across the globe,” said Dr. Lucie Bruijn, chief scientist at The ALS Association
Continue reading ALS Reproducible Antibody Platform is Created to Ensure Highest-Quality Antibodies to the ALS Community
Did you know we have been using telemedicine since the 1960s? Neil Armstrong and his fellow astronauts wore medical monitoring devices developed by NASA during their first moon landing in 1969. Since then, the use of telemedicine has exploded. Over half of all U.S. hospitals now use some form of telemedicine through more than 200 telemedicine networks.
According to the American Telemedicine Association, telemedicine is the remote delivery of health care services and clinical information using telecommunication technology. Millions of people use telemedicine to stay out of emergency rooms and hospitals, and instead, receive medical services at home. Telemedicine is also a great way to bring medical services to rural areas.
As the health of people living with ALS declines over time, telemedicine could be integral in reducing barriers to treatment and improving overall care. With that in mind, integrating telemedicine into multidisciplinary ALS care is beginning to emerge, but few reports evaluate its technical and medical feasibility.
Continue reading How Telemedicine is Integrating into ALS Multidisciplinary Care