Every Mother: Meet Suzy

All month, we are featuring stories of individuals who are having an impact in the fight against ALS.

Meet Suzy Shealy from Columbia, S.C. Suzy is a wife, Gold Star mother (son Army Sgt. Joseph Derrick), grandmother, sister, person living with ALS and a tireless ALS advocate. We recently sat down with Suzy to get to know her and learn how ALS impacts her life.

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Every Father: Meet Tim

All month, we are featuring stories of individuals who are having an impact in the fight against ALS.

Meet Tim Ritter from Myrtle Beach, S.C. Tim is a husband, father, Navy veteran, professor and a person living with ALS. We recently sat down with Tim to learn about the most impactful moments in his life that has defined who he is today.

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A Patient Advocate and Doctor’s Perspective on Clinical Trials: Update on the Retigabine Phase II Trial

Last week, Dr. Brian Wainger of Massachusetts General Hospital and Stephen Winthrop, Chairman of The ALS Association Board of Trustees, gave their unique clinical trial perspectives during the Northeast ALS Consortium (NEALS) webinar titled, “Retigabine Clinical Trial Update & Discussion with ALS Patient Advocate Stephen Winthrop.” For many years, The ALS Association has proudly partnered with NEALS to run ALS centered webinars to disseminate the most up-to-date information to the ALS community. Today’s post discusses the actively enrolling Retigabine clinical trial, which The ALS Association funds, as well as an honest perspective on what it is like to participate in ALS clinical trials.

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Every Musician Adds Up: Meet Lauren & Ann

All month, we are featuring stories of individuals who are having an impact in the fight against ALS.

Meet Lauren Duski and Ann Gillis. Lauren is a talented musician, storyteller, songwriter and devoted caregiver to Ann Gillis, an independent filmmaker living with ALS. With Ann’s encouragement and generosity, Lauren uprooted her life to pursue a country music career and become the successful musician she is today.

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Every Fan Adds Up: Meet Shelly

All month, we are featuring stories of individuals who are having an impact in the fight against ALS.

Meet Shelly Hoover. Shelly is a wife, mother, grandmother, daughter, sister, friend, educator, Giants baseball fan, military veteran and ALS advocate. When you meet Shelly, there are two things that immediately become apparent, her joy for life and her passion for working to advocate for people with ALS.  Her accomplishments are many. Since her diagnosis, she has volunteered, advocated and fundraised tirelessly. She and her family are why we fight for a cure!

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Announcing New Care Services Educational Materials: Spanish Resource Guides & Key Medical Information App

Over the last several months, The ALS Association has worked on developing and implementing new educational tools to meet the needs and requests of our community. We are pleased to announce and highlight two of our newest projects – our resource guide series translated into Spanish and the Key Medical Information App – which are now available.

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Every Fan Adds Up

ALS has always had a connection with baseball. In 1939 when Lou Gehrig stood on the mound, the world became aware of the disease. In 2014, Boston college player Pete Frates inspired the world to take part in the fight against ALS. In 2017, Major League Baseball is supporting The ALS Association’s launch of the Home Health Initiative. Together, we want to raise over $1 million dollars to provide in-home care to individuals and families affected by ALS.

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