Guest Post: ‘I’m Really Fighting for My Family’

By Stacy Crowder

There’s no sugarcoating it. ALS is terrible.

Unlike many fathers this Halloween, I couldn’t carve a pumpkin with my kids. I also couldn’t help them put on their costumes or take them trick-or-treating.

I didn’t know much about ALS before my diagnosis, but I became an expert pretty quick. I also got to work fighting – and not just for me but to bring hope to everyone living with ALS.

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Guest Post: Putting the Brakes on ALS – The Power of Community

By Kaisha Johnson and Cliff Whitlock, The ALS Association Golden West Chapter

More than 1,200 participants, volunteers, and members of the community came together for a family-friendly day of celebration, exercise, education, awareness, music, food, and family fun at The ALS Association Golden West Chapter’s 14th annual Napa Valley Ride to Defeat ALS and Walk on Saturday, September 22.

Together, these dedicated individuals raised more than $920,000 on event day toward a $1 million goal to fund the mission priorities of the Golden West Chapter in care services, advocacy, and research.

Held at the California Veterans Home in Yountville, the annual Fall event brings incredible energy and an outpouring of support for those affected by ALS in California and around the world. Many participants said it was the best ride they’ve attended.

There was an incredible outpouring of community support, including more than 140 volunteers who set up, checked in participants, served food and drinks, supported rest stops and the six bike routes, cheered on all of our incredible riders and walkers as they crossed the finish line, and so much more.

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Team Challenge ALS Climbs to Defeat ALS

An amazing group of people came together for Climb to Defeat ALS earlier this month. The first Team Challenge ALS team summited Mt. Elbert in Colorado on September 7 and has raised over $65,000 for The ALS Association, so far.

We asked a few team members to tell us about their experiences.

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Unlock ALS Honors the Real Reasons We Walk to Defeat ALS

“When someone you love becomes a memory…that memory becomes a treasure,” said Christine Caron, a participant in the Western Massachusetts Walk to Defeat ALS.

Each year, tens of thousands of people come together at Walk to Defeat ALS® events across the country with one common goal: to remember treasured loved ones and honor those who are fighting ALS every day.

The ALS Association launched Unlock ALS at Walk events this fall to provide participants with a tangible way to recognize the real reasons we Walk to Defeat ALS. At each Walk event, participants select a lanyard in one of four colors to represent their connection to ALS, receive a branded key, and join in a meaningful opening ceremony.

“Seeing all the different colored lanyards made me feel like we were one big family as we’re all going through this together,” said Roxane Baillargeon, a Western Massachusetts Walk participant who is living with ALS.

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ALS Takes Away a Person’s Livelihood

In New Video, People With ALS Talk About Losing Jobs to the Disease

This weekend, people across the country will pause to reflect on and celebrate the economic and social value of American workers. And on Monday, many of them will enjoy a paid holiday off from work.

As we light the grills to enjoy a long Labor Day weekend and enjoy a break from some of the doldrums of work – the long commutes, the looming deadlines, and the stress and monotony – there are many people who want to work but are unable to do so.

One of the first things ALS often takes away is a person’s ability earn a living. In this new video, people living with ALS, along with their caregivers and friends, talk about the impact ALS has on the ability to work.

Please watch and share this video with your friends and family and encourage them to join the fight for a world without ALS.

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Kids Inspire Us to Fight ALS

Our Every Drop Adds Up campaign builds on the idea that people coming together for a common goal can make the impossible happen, just as it did four summers ago when the ALS Ice Bucket Challenge soaked the world. Every person helped, research project funded, story shared, discovery made, piece of legislation passed, and dollar raised – it all adds up!

ALS affects everyone in the family – even kids.

In a new video, real families talk about the impact that a loved one having ALS has on young people – how the disease can be scary and confusing for them and how kids can inspire us all to keep fighting. Watch it and share with your friends and family.

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PopSockets and The ALS Association: A Unique Connection

Our Every Drop Adds Up campaign builds on the idea that people coming together for a common goal can make the impossible happen, just as it did four summers ago when the ALS Ice Bucket Challenge soaked the world. Every person helped, research project funded, story shared, discovery made, piece of legislation passed, and auction bid placed – it all adds up!

We’ve been telling you how excited we are about PopSockets joining the fight against ALS this summer. The company is donating 10 percent of net proceeds for every PopSockets grip purchased on their website through September 30.

The funds will go directly toward supporting research into treatments and a cure for ALS, plus care services and advocacy for people living with the disease.

What we haven’t shared is the special connection between PopSockets and The ALS Association.

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