REPORT FROM HOUSTON: Home Visits

Thomas Todd is one of the hundreds of people living with ALS who was impacted by Hurricane Harvey. As Harvey approached, Thomas was able to safely ride out the storm with friends, but the hurricane had a devastating impact on his house. Harvey flooded his house with nearly two feet of water.

As part of our outreach efforts, The ALS Association Texas Chapter contacted Thomas to assess his needs. When we met up with Thomas he was waiting outside his house, unable to enter because the waters shifted the ramp into his house.

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Every Accountant Adds Up

Meet Howard B. Levy, a highly accomplished certified public accountant with a national reputation and a long history of involvement with and support for The ALS Association. He learned of the Association during the mid-1980s during the last year of the life of his dear father, Jack Levy, who had ALS. Howard offered to serve as a member of the Association’s Board of Trustees and because of his skill as an accountant, was soon invited to fill a vacancy as its national treasurer. He served in that role for almost seven years, during which time the Association was a small national charity whose annual contributions barely achieved $5 million. Nevertheless, Howard was responsible for making substantial improvements in the Association’s internal and public financial reporting processes and internal controls, including its budgeting, the latter of which led to a significant enhancement in its financial condition. Howard later served for a time on the Board of Trustees of the Nevada Chapter. Howard continues to consider his service as national treasurer the most important thing he has ever done. It was this service that inspired him to write The Volunteer Treasurer’s Handbook: Financial Management Building Blocks for Not-for-Profit Organizations (available free at http://pbtk.com/non_profit.asp#), which in its original edition was intended only for use by Chapter treasurers.

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Team Challenge ALS Makes Finals of The Basketball Tournament!

Please join us in congratulating Team Challenge ALS for winning last night’s thrilling 2-OT semifinal victory in The Basketball Tournament, a 5-on-5, single-elimination basketball tournament. They play in the final game on Thursday night at 7 pm ET on ESPN. The winning team takes home $2 million!

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Major League Baseball Partners with ALS Association to Launch “MLB Fights ALS” Campaign

Major League Baseball today announced its support of The ALS Association’s ALS Home Health Initiative by launching the MLB Fights ALS campaign, a league-wide fundraising effort set for August 1st-5th. The campaign will be promoted in ballparks and by MLB’s media assets, including MLB.com, the Club websites and MLB Network, as well as via YouCaring.com. Beginning with an initial $50,000 contribution from Major League Baseball, the effort will seek to generate additional funds for the Home Health Initiative’s mission of providing in-home care to individuals and families affected by Lou Gehrig’s Disease.

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Concerns About President Trump’s Proposed Budget Cuts

Last week, President Trump submitted his budget request to Congress. Included in the proposal are changes to funding for Medicaid, cuts to Social Security Disability Insurance (SSDI), cuts to the National Institutes of Health (NIH) and the complete defunding of the National ALS Registry at the Centers for Disease Control (CDC). The ALS Association is very concerned that these proposals will negatively impact people affected by ALS and will slow down the progress we have made in research for treatments and a cure. We do not believe this is a partisan issue – Members of Congress on both sides of the aisle have expressed concerns about the cuts contained in the President’s budget.

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ALS Films to Watch

There are many ways, both big and small, to raise ALS awareness. Some people have used their filmmaking or public speaking talents to craft compelling stories of those living with this disease. From TED talks to award-winning documentaries, these videos inspire, educate, challenge and entertain viewers, while celebrating the lives of people with ALS and the contributions they have made.

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Advocacy Stories Inspire Hope

Thank you to the over 600 people that descended on Capitol Hill on Tuesday during The ALS Association’s 2017 Advocacy Conference. So many advocates shared their stories to inspire their local legislators to support important ALS initiatives. Of those in attendance, 286 people were first time participants. Nearly every state in the country was represented, and most importantly, 128 people living with ALS made the trip to Washington, DC. Over 400 legislative offices were visited on both sides of the aisle.

Photo Highlights from a Day on the Hill:

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Karolina Phelan and her two beautiful daughters Emma and Sophia from the Greater Philadelphia Chapter lost their husband and father to ALS. Hear from this special family sharing their story with Congresswoman Bonnie Watson Coleman.

Donate today to support the fight against ALS.