March 17 Update from ALS Association President and CEO Calaneet Balas

Members of the ALS community,

I want to provide you with an update on how The ALS Association is serving the ALS community as COVID-19 progresses. We know this is a concerning time for many and we want to assure you that we are continuing our urgent mission to find treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.

First and foremost, the safety and well-being of people living with ALS and those in the ALS community continues to be our highest priority. To safeguard the ALS community, The ALS Association is modifying our services and planned events including Walk to Defeat ALS, support groups and home visits as recommended by the CDC, as well as local and state officials.

Where possible, The ALS Association and our nationwide chapter network will transition activities to virtual platforms. This includes:

  • Online support groups
  • Virtual home visits
  • Care Services staff available by phone and email
  • Support for telehealth/telemedicine services through our Certified Treatment Centers and Recognized Treatment Centers

If you have questions about local chapter events or activities, we encourage you to contact your chapter directly.

This is a rapidly evolving situation and The ALS Association will continue to update you on how we are serving the ALS community throughout COVID-19. For the most recent information about COVID-19, The ALS Association recommends visiting the CDC and the World Health Organization (WHO) websites.

Please stay safe and let us know if you have any questions. You can email us at questions@alsa-national.org

All my best,

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