Show Appreciation to a Caregiver During National Family Caregivers Month

November is National Family Caregivers Month. Join The ALS Association in honoring caregivers throughout the month. 

“Being a caregiver of someone with ALS is incredibly challenging, and my role hasn’t even begun to be that physical yet,” said Jen LeVasseur. Her husband, Noel, was diagnosed with ALS in 2017, just over a year after they were married. 

According to a 2018 report from the National Alliance for Caregiving, primary caregivers are often family members or partners who spend up to 11 hours a day with the patient. Caregivers reported high levels of financial strain and emotionally stress. A 1999 study showed that people who experience caregiver strain have higher mortality rates. 

“A lot of people will say, ‘How do you do it? How are you doing today?’ And I know they mean well, and then when they say, ‘I wouldn’t be able to do it if I were you,’ and I look at them and I say, ‘Yes, you would be able to do it if you were in my role,’ because you have to. What are your choices? You have to take care of that person. You wouldn’t be able to live with yourself if you didn’t. And you just take one day at a time,” LeVasseur said. 

Because caregivers are crucial to the lives of those living with ALS, it is essential to prevent ALS caregiver burnout. The ALS Association recommends that family and friends of caregivers make a periodic effort to provide respite care for caregivers.  Respite care is simply a period of rest or time away for an activity that will bring pleasure to a caregiver. Respite care is also a way to show say “thank-you” for the exhaustive work that they do. 

Eighty-four percent of caregivers help their care recipient with medical or nursing tasks. Simply giving the primary caregiver a break from his or her responsibilities by taking a day to help with these tasks can take a load off of a caregiver. Preparing a meal, getting groceries or helping with car maintenance like an oil change can also be very helpful to a tired caregiver. Chores or errands that seem insignificant to others can become a burden to caregivers who provide around-the-clock assistance to a loved one with ALS.  

Respite care activities can also be a leisure activity such as a trip to the movie theater or dinner at a favorite restaurant; even a community event like a museum exhibit or festival can provide a welcome change – anything that they would enjoy or gives them a reason to smile. 

Simply letting caregivers know that you are thinking of them, and that you appreciate them can make a world of difference. Caregivers can feel taken for granted at times, and a sincere gesture of appreciation no matter how large or small makes a difference. A simple phone call or greeting card of appreciation or thanks.

Throughout the month, The ALS Association will be sharing the stories of some of the caregivers in our community. In the meantime, find a caregiver in your community. Thank them. And ask them how you can help. 

For more ideas on respite care for caregivers, visit http://www.alsa.org/als-care/caregivers/respite-care.html. Information on how to fund respite care can be found at http://www.alsa.org/als-care/resources/fyi/respite.html

6 thoughts on “Show Appreciation to a Caregiver During National Family Caregivers Month”

  1. Though I do not suffer from ALS I do unfortunately live with a life alternating disease & my Husband is my primary care giver.. So with that being said, if November is recognized as National ALS Care Giver month I personally feel as though November should also be recognized as “National Care Giver” month regardless of the illness… Just my opinion.. Thank you…

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  2. It never occurred to me until my now ex wife was diagnosed with als what it means to be a caregiver.i worked full time the first four years and was also her caretaker.when I could no longer pay for 40 hrs of caretaking(15-30 dollars per hour) I retired to take care of her.im beginning my second year of 24/7 365 caregiving.probably the hardest part of it for me is watching someone you care very much about slowly waste away.the lack of support for her from her family is a close second because of the pain she feels from believing no one really cares about what’s she’s going through.we both feel very isolated and alone in this life we have been handed.so if you know someone in this type of situation ,please take a moment and send a text or email or something,even if all you can think to say is am thinking about you.you may raise the spirits of an als patient and save a caregivers life.

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