Projects We Funded in 2018 Accelerated Momentum Toward the Search for Treatments and a Cure

In 2018, many new research discoveries and collaborations accelerated the momentum toward finding treatments and a cure for ALS. We helped lead the way by awarding new grants to top scientists and clinicians all over the world.

Here are just a few of the biggest advances in ALS research this past year that give us hope.

All of these projects were funded by The ALS Association.

  • KIF5A ALS gene was discovered. A large collaborative effort involving over 250 researchers, led by Dr. John Landers (UMass Medical School) and Dr. Bryan Traynor (National Institutes of Health), came together to achieve this exciting gene discovery, including organizations supported by The ALS Association.
  • Assistive technology advanced at a rapid pace. Pison Technology, winner of our Assistive Technology Challenge, is growing. Our $100,000 investment leveraged over $1.7 million in outside funding and their wearable muscle sensor technology is moving quickly toward the market.
  • Drug development moved compounds toward the clinic. A viral gene therapy targeting the ALS SOD1 gene was proven safe and effective in nonhuman primates, paving the way for a human clinical trial.

Check out our research infographic here to learn more about all the projects and collaborations that made a difference this year.

Help us continue this momentum into the new year. Your tax-deductible gift will allow us to continue our critical funding of the most promising research from around the world, leading us closer to effective treatments and a cure for ALS. You can donate here.

Thank you for your support – for giving hope and making an impact on the lives of people affected by ALS.

3 thoughts on “Projects We Funded in 2018 Accelerated Momentum Toward the Search for Treatments and a Cure”

    1. This article includes a few highlights from our research mission area. You can see the full research summary for 2018 here: http://www.alsa.org/fight-als/year-end-impact-research-infographic.html. And you can see the advocacy summary here: http://www.alsa.org/fight-als/year-end-impact-advocacy-infographic.html. And the care services summary here: http://www.alsa.org/fight-als/year-end-impact-care-infographic.html. Again, these are just highlight summaries.

      Best,
      Cyndi

      Like

  1. https://www.ncbi.nlm.nih.gov/pubmed/29566793 seems to be a link for the first one about the gene discovery. (I wondered why nothing about that is linked here.) But it’s unfortunate that after being funded by truly public money (not only tax money via NIH, but also the voluntary contributions from here, if it’s the same study), this research was published in a closed journal that sells copies of individual articles. ALSA should insist that such research be published freely.

    Sounds like a worthwhile discovery though.

    Like

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