We Helped Support Over 20,000 People with ALS This Year

People living with ALS come first in everything we do. We’re dedicated to providing people fighting ALS and their families and friends with the critical information, support, and resources they need to live full lives and better meet daily challenges.

Our chapters help people living with ALS and their families across the country through our equipment loan closets, support groups, augmentative communication and assistive technology program, caregiver support, and education and outreach.

We also collaborate with the best ALS physicians and clinics in our service areas to help ensure that people living with ALS have access to specialized multidisciplinary care.

Here are just a few ways we provided critical assistance to those living with ALS and their families in 2018:

  • More than $4 million in grants were provided through our Certified Center Program
  • Nearly 9,000 people were served specifically through our Certified Treatment Centers of Excellence and Recognized Treatment Centers
  • More than 2,400 veterans received assistance through our nationwide chapter network

Check out our latest infographic to discover all the ways we made a difference to the more than 20,000 people with ALS we served this year. (You can also view the infographic on our website here.) These efforts are essential in improving the quality of life for people fighting ALS.


We need your help TODAY to continue to provide the best care across the country. Your tax-deductible gift will allow us to continue these crucial services into 2019. We can’t do it without you!

Thank you for your support – for giving hope and making an impact on the lives of people affected by ALS.

2 thoughts on “We Helped Support Over 20,000 People with ALS This Year”

  1. How can you possibly reconcile these numbers with the number of people with ALS that the CDC ALS Registry finds. If you add your numbers to MDA’s and Les Turner’s, something just doesn’t make sense when the CDC has found at most 16,583 people with ALS in the entire country.

    We’ve plowed $88,000,000 into that Registry at your behest. Does it reflect reality, or does your infographic? It can’t be both.

    Liked by 1 person

    1. Thanks for your comment and I apologize for the delay in responding. If we add patient counts across organizations, we will have an overcount, since some people are served in multiple places (i.e. by multiple chapters). The National ALS Registry is the only system designed to count unique individuals with ALS. It also funds research into the causes for ALS and makes specimens available to the scientific community. We know the Registry is undercount, though its accuracy has been improving over time. For example, using 2011 data, they only found about 12,000 cases, where as they are now able to identify now able to identify over 16,500 people with ALS. We are working with the Registry to improve their accuracy.


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