Our Every Drop Adds Up campaign builds on the idea that people coming together for a common goal can make the impossible happen, just as it did four summers ago when the ALS Ice Bucket Challenge soaked the world. Every person helped, research project funded, story shared, discovery made, dollar raised, piece of legislation passed, mile walked, and auction bid placed – it all adds up!
Noel LeVasseur thought he was dealing with the aches and pains that come after years of holding down a physically demanding job – maybe carpal tunnel or arthritis.
“Then finally we got the diagnosis that our world was going to change quickly,” he said.
In November 2017, Noel was diagnosed with ALS.
Noel said the diagnosis wasn’t a “woe is me” moment because he and his family sensed what was happening. Instead, he said, it was time to move to the next stage in life and come up with a new plan.
Noel married his wife, Jen, just two years ago. He’s the father of two daughters, Morgan and Madison, and the stepfather of Jen’s two sons. He likens his blended family as one boy and one girl away from the Brady Bunch.
Noel talked to us about the new life plan – about the bad and the good days, the challenge of brushing his teeth some mornings, and the beer fests, concerts, and ballgames in his future.
Watch this video featuring Noel and Jen then share their story with your friends and family to help raise awareness of ALS.
Noel told us that he wants to use his ALS diagnosis to fight for everybody else.
“I’m okay with a diagnosis of ALS,” he said. “I’m here to do good for this, to try to help those that don’t have that support, or just don’t even know how to go about trying to voice their concerns and things.”
Donate now to keep the momentum going as we fight for a world without ALS.
You can also support us by sharing stories from our ALS community, like this one. (Click one of the “share” buttons below.) Or by bidding on an ALS Auction item, telling us your own story, picking up a PopSockets grip, or hosting a fundraiser.
As the ALS Ice Bucket Challenge proved, small actions can have a major impact. Or, as we like to put it, Every Drop Adds Up! Thanks for your help!