The Steve Gleason Enduring Voices Act is now law!
This morning, President Trump signed the Bipartisan Budget Act of 2018 (H.R. 1892), which included the Steve Gleason Enduring Voices Act. The Act will permanently fix the current Centers for Medicare and Medicaid Services (CMS) policy limiting access to Speech Generating Devices (SGD) for people with degenerative diseases.
Read our article from earlier this week for more details.
That is so great! It will help all of us as we lose our speech ability which is currently happening to me.
Many thanks to the TeamGleason!!
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Awesome news! Now let’s find the cure to beating this horrible disease and approve the stem cell treatment by Brainstorm so I can enjoy my life with my three children.
Sincerely,
Andrew Jablon
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Great news about the Steve Gleason Enduring Voices Act! Amazing job Team Gleason. Thanks for all you do to help people with this devastating disease. Now it’s time to gear up the efforts to bring down the costs of the much needed medications for people with this debilitating disease. So many people do without these drugs because they simply cannot afford them.
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