Every Mother: Meet Suzy

All month, we are featuring stories of individuals who are having an impact in the fight against ALS.

Meet Suzy Shealy from Columbia, S.C. Suzy is a wife, Gold Star mother (son Army Sgt. Joseph Derrick), grandmother, sister, person living with ALS and a tireless ALS advocate. We recently sat down with Suzy to get to know her and learn how ALS impacts her life.

From Suzy:

At age 56, I first became a grandmother to Liam. Since then, I have had two more wonderful grandchildren, Mason and Sophia – the ability to see life from an eternal perspective has given me so much joy.

At age 58, I was diagnosed with ALS. That day I was overwhelmed, but with a sense of joy, perfect peace and love. I began to study the Bible to learn all that I could from its words. I knew I had a purpose for my life. I was completely convinced that I had been given an opportunity to encourage others and help ease the burdens of others in their time of great need.

“The thing is, we in the ALS community have the opportunity to encourage others still. When we are unable to stand, take a stand on our behalf to ensure every person has access to proper equipment, quality care and quality caregivers. When we can no longer use our hands, please use your own to undergird our caregivers and use them to help out. When we lose our voice, speak out about the need for funding, research, and educating the public. While we lay paralyzed, please know that we do not have time to wait for a cure.”

Suzy remains strong in her faith. It’s with a purpose that we fight against ALS. Donate today.

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6 thoughts on “Every Mother: Meet Suzy”

  1. In 2012 after the birth of her baby daughter, my granddaughter was diagnosed with ALS. No cure has been found for this horrible disease. I pray continually for her as well as all others who suffer with ALS for that cure to be found. I pray in the name of The Father, The Son and The Holy Spirit for the healing of her and all others suffering with ALS.

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  2. Thanks for your experience Susan, I’d love if we could chat one day. I’m italian and my family hasvbeen impacted by ALS twice. Anyway I send you a big hug and thanks for your positivity.

    Laura Cocco
    Sardinia, Italy

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  3. My husband was diagnosed 30 years ago He is still fighting the fight We have been very lucky to have him with us this long Though he uses a walker and a wheelchair he is still able to get around He is very grateful to see his children grow and his grandchildren Through him they are very grateful for getting to know their grandpa. Here’s to life live it to the most

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  4. My sister in law also has ALS and she has participated in the word banking at Oschners in New Orleans and has donated her voice to others who can no longer speak for various reasons. She is a remarkable person always thinking of others and ways to help.

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