ALS Entrepreneur Kevin Gosnell Passes Away Leaving Important Legacy in ALS ONE

Kevin Gosnell, founder of ALS ONE, passed away on Monday because of complications from the disease. Gosnell was diagnosed with ALS in spring 2015 and immediately put his business acumen and CEO leadership skills to work, convening the best minds in the ALS community. He founded ALS ONE in January 2016 and brought together leading neurology experts and care specialists from Massachusetts in partnership to leverage their institutions’ strengths to expedite progress toward finding a treatment for ALS within the next four years.

Partners in the initiative include The ALS Association, ALS Finding a Cure Foundation, ALS Therapy Development Institute, Massachusetts General Hospital, UMass Medical School and Compassionate Care ALS.

“Kevin’s vision became a reality with the launch of ALS ONE earlier this year. His legacy will be advancing research while simultaneously working to improve the care model for persons living with ALS and their families,” said Barb Newhouse, President and CEO of The ALS Association.

Lucie Bruin, Ph.D., M.B.A., Chief Scientist of The ALS Association, and Stephen Winthrop, a member of The Association’s National Board of Trustees, both serve on ALS ONE’s Board of Directors.

“To say that I am saddened and hit hard by this news is a vast understatement,” said Winthrop. “I and many people living with ALS like me have been strengthened and inspired by Kevin’s impact upon our lives. If I’m not around to see the upcoming wave of breakthroughs, other people alive today will be. And Kevin’s name will be high on the list of people credited with contributing to those breakthroughs.”

10 thoughts on “ALS Entrepreneur Kevin Gosnell Passes Away Leaving Important Legacy in ALS ONE”

  1. I am so sorry and saddened by this
    My mother passed away 14 years ago from ALS after suffering for two years
    It is a horrible disease for both patient and caregivers

    I hope in someone’s lifetime that a cure is found


  2. My mom passed earlier this year in April after being diagnosed 3 weeks prior. Was very hard as not it hit home but I work with those who endure the illness as well. I know one day a cure will be found or better treatments


  3. My husband has ALS. It sucks but with each new trial we are growing closer together. We still have children at home and my husband is only 41. We have been married 20 years. We just got his Permobil yesterday and boy it sure is helping.


  4. My mom died of ALS in September 2012 got diagnosed in June of the same year. It is a terrible disease. I am so sorry for your loss.


  5. My mom died in September of 2012 with ALS she was diagnosed with it in June of the same year. I really do miss her and everyone that new her. Miss her very much. I am so sorry for your loss of your loved one. God bless you all.


  6. Another loss in the ALS community today but his strength and grace will live on. I hope there is a cure one day soon. My husband was diagnosed in August 2015. I am sure one day we will find a cure and stomp out a disease that takes the breath away for the diagnosed and their families. Prayers and thanks to everyone who is involved in the fight.


  7. ALS ONE is the best idea; get the leading minds together minds together and collaborate. He leaves a legacy that hopefully will continue to gain momentum.
    May his memory be a blessing.


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